Anyone who joined us for WMS 2024 in Prague, Czechia, or WMS 2023 in Charleston, South Carolina, USA, will remember our legacy tokens and how we used them to vote for local good causes.

We’re pleased to be able to update you on how our 2024 legacy is being put to good use in Prague.

CMT

Hello, once again we would like to thank you for the opportunity that we, as representatives of the C-M-T Society, could participate in the World Muscle Society 2024 annual Congress from October 8 to 12, 2024 at the Prague Congress Center.

The Congress was not only a platform for the presentation of cutting-edge research, but also an opportunity for us to establish lasting connections with experts from all over the world. We made new contacts and met many nice people.

We would also like to thank you for the financial support for our association. CMT received 46,466CZK (1,872 Euro). We will use the money for our events (professional seminars, weekend patient meetings, printing of the magazine).

Once again, we thank the organisers for the opportunity to participate in such a wonderful event!

PARENT PROJECT, z.s.

PARENT PROJECT, z.s. is a parent-led Czech patient organisation that brings together families of children and adults living with Duchenne and Becker muscular dystrophy. It provides support for everyday life with this rare diagnosis, offers professional social counselling, ensures multidisciplinary care, organises rehabilitation stays and educational events, and advocates for systemic changes to benefit patients. The organisation also focuses on awareness-raising and collaborates with doctors, researchers, and institutions both in Czechia and abroad.

Thanks to the generous support from the World Muscle Society Congress 2024 in Prague, PARENT PROJECT, z. s.  received financial support amounting to 108,887 CZK (4,355 Euro).

This funding has been instrumental in organising psycho-rehabilitation stays in spring 2025 for children and adults living with Duchenne muscular dystrophy and their families. These therapeutic retreats provide not only physiotherapy and psychological support, but also a safe space for families to share experiences, recharge emotionally, and strengthen community ties.

The grant made it possible for multiple families from across the Czech Republic to participate in this programme, which plays a key role in maintaining both physical and mental health for individuals affected by progressive neuromuscular disorders.

We are deeply grateful to the WMS Local Organising Committee for recognising the importance of long-term support for families living with muscular dystrophy.

SMAci

We're SMAci, the Spinal Muscular Atrophy patient organisation in Czechia. Our mission is to support individuals and families living with SMA, advocate for their needs, and raise awareness about this rare condition.

The World Muscle Society (WMS) Congress 2024 in Prague was a truly inspiring event, and  SMAci are so grateful to have been a part of it. Beyond the incredible science, the WMS has shown such genuine support for patient organisations like ours, and we couldn't be happier about our collaboration!

The funding provided by the WMS in the amount of 57,088.28 CZK (2,284 Euros) has been a game-changer for us, helping us significantly improve our activities, mainly in these three areas:

• Crisis intervention for SMA families: This support has been crucial in allowing us to provide timely and much-needed help to families facing challenging situations here in our country.
• Raising awareness: We've been able to seriously step up our efforts to teach public about SMA and how it impacts lives.
• Essential materials for our team and community: We have developed awesome novel training and advocacy kits for our dedicated colleagues and for the whole SMA community, which will further support our efforts to advocate and disseminate accurate information.

Our partnership with the WMS is something we deeply value. The society understands that a real progress in neuromuscular diseases is driven by cutting-edge research combined with strong patient support. We're truly looking forward to continuing our work together, building a brighter future for everyone living with muscle conditions.

AMD-MDA

The Muscular Dystrophy Association in Czechia is a nationwide association that brings together people affected by muscular dystrophy and other neuromuscular diseases.

It aims to support children and adults affected by neuromuscular diseases, to help them integrate into society, to provide the necessary information to maintain the best possible quality of life and to promote the improvement of multidisciplinary care.

The donation from the Legacy Tokens scheme has been a great help. We are using the funds primarily to organise rehabilitation stays for our members, where they can access swimming pools, participate in therapeutic exercise sessions, and receive massages—all of which significantly improve their physical well-being and quality of life.

Additionally, the donation has supported the assistance and transportation of our members to various events and medical appointments, making these activities more accessible to people with limited mobility.

We also publish a newsletter called Zpravodaj, which keeps our members informed about the latest treatments, research developments, and includes translations of important international materials related to neuromuscular diseases.

AMD-MDA received 80,175 CZK (3,230 Euro) to contribute towards its work.

Look out for announcements about our WMS 2025 Vienna legacy.